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Puzzled by next steps? PIECE TOGETHER PV

Uncontrolled blood counts and symptoms can feel confusing, making it difficult to connect the right pieces. But understanding polycythemia vera (PV) and your options empowers you to speak up, take control, and make informed long-term decisions.

Seeing the full picture starts with knowledge

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What is PV?

Learn about the causes of this rare, chronic blood cancer, the symptoms you may experience, and the potential risks and complications it can lead to.
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Managing PV

Gain a deeper understanding of how monitoring all blood counts and exploring treatment options can help you reach your goals.
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Talking to your doctor

Own your journey forward—track your symptoms, set clear treatment goals, and self-advocate with confidence during care team discussions.

The PV Pod: Stories
From the Marrow

Hear the lived experiences of other people impacted by PV.

Advocate, advocate, advocate. Don’t be satisfied with a watch and wait protocol. It’s really important to research…to get ahead of your PV diagnosis to hopefully avoid disease progression.

Dana
Diagnosed with PV at age 29

Listen now

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